Showing posts with label other. Show all posts
Showing posts with label other. Show all posts

Sunday, October 11, 2009

John Best Junior DISRESPECTS adults with Autism Spectrum Disorders.

Who is John Best Junior? John is a father whose son has Autistic Disorder, with severe to profound behavioural, communication, intellectual, and social skill and interaction challenges.

Who is Ari Ne'eman?
Ari is an adult who experiences Asperger's and talks about it from HIS perspective.

Who is Scott Michael Robertson?
Scott is an adult who experiences Asperger's Syndrome, anxiety, depression, and other challenges. Scott presents on Asperger's Syndrome from HIS perspective.

Who am I?
I am an an adult who experiences Asperger's Syndrome. I consider Ari my BEST friend.

What does John Best Junior do?
John continually attacks and LIES about Ari on his blog, "Hating Autism." John has attacked Scott and LIED about him, too (one post).

What does Ari Ne'eman do?
Ari LISTENS TO, offers suggestions, stays positive, and HELPS people -especially adults, with Asperger's Syndrome, Autistic Disorder, and PDD-NOS. Ari runs the Autistic Self Advocacy Network (ASAN) for people with Autism Spectrum Disorder differences. Ari attends the University of Baltimore-Maryland, and he wants to be a lawyer. His dream is to make the world a better place for people with neurological disability differences, mental illnesses, and othe disabilities. Ari wants to see people with ASD differences be successful.

What does Scott Michael Roberston do?
Scott runs a support group for people on the Autism Spectrum. Scott LISTENS TO and gives suggestions to people with ASD differences. Scott wants to see people with ASD differences be successful.

What do I do?
I am working very HARD to be like my hero and role-models, Ari and Scott. One of my goals is to be INVOLVED in ASAN as much as possible.

Tuesday, June 23, 2009

The TRUTH about two adults who are Autistic

Katie, 21, and her best friend Ari Ne’eman, 21, were both misdiagnosed with ADD/HD. Katie was diagnosed with PDD-NOS in 5th grade. She was re-diagnosed with Asperger’s Disorder (AS) is high school.

Now, they are both on the Autism Spectrum (Asperger’s). They work VERY hard to manage their Autistic challenges and related conditions (if applicable). Because they work hard to fit in with neurologically typical people, they are non-distinguishable from their peers in community employment, educational, and public settings. Nonetheless, they are STILL Autistic.

When “medical professionals” like Jenny McCarthy sell the promise of “cures” and “recovery”, they are not only lying to themselves, but also to the many parents of people on the Autism Spectrum and Autistic adults who believe quackery.

Ari and I have been through all that is offered by the best and the worst of our Autism Spectrum disability.

We are now viewing the worst SCAM ever. I pray that Ari, the Autistic community, and I will NOT have to view Autism "advocacy" (fraud) for much longer.

The Phony Autism Spectrum "wars" and other information

I'm trying to understand why people spend so much time, effort, and energy attacking my friend, Ari Ne'eman. Ari Ne’eman is a successful, intelligent, articulate, hard-working young adult who is Autistic. He has an Asperger's disorder diagnosis - NO functioning labels attached. Ari and I disagree on specific aspects of treatments, education, and intervention for individuals on the Autism Spectrum to improve his or her quality of life, other issues such as the research agenda, to cure or not cure, and other autism related issues. However, Ari's desire to create positive change that will support, educate, and accommodate individuals with Autism Spectrum disorders is genuine and well intentioned.

However, his detractors are making his agenda VERY difficult and STRESSFUL. They have created a very hostile environment in forums, chat rooms, list serves, and other online public places. These detractors use abusive language, threats including death, profanity, and other creative, disrespectful means to get their point across. Does the Autism Spectrum (Autistic) community need this? The obvious answer is “No.” However, some individuals specifically target certain individuals they presume as “dangerous.”

I am a strong supporter of respectful language. Terminology or phrases such as: disease, brain damage or dead, train wreck, dysfunctional, broken, not fully human or there, emotionless, vegetable, and other similar descriptions are not only offensive but also NOT accurate words to describe people with Autism Spectrum disorders. Autism forums, chat rooms, and similar places online are created for parents of children and adults with various Autism disorder diagnoses for support, suggestions, and similar reasons. Autism online places have been created for everyone - parents, adults on the Autism Spectrum, educators, friends, scientists, medical professionals, and other people in the Autism or Autistic community.

I do NOT have the right to speak on behalf of other people with Autism Spectrum Disorders. For example, I cannot tell Harold Doherty, a parent of an adolescent with an Autistic Disorder diagnosis, assessed with profound developmental delays, to stop supporting research for a cure. People who converse online in forums, chat rooms, et cetera are NOT qualified to diagnose anyone on the Autism Spectrum. Without certification in an educational background such as: Psychology, special education, or other related field, people are NOT qualified to even suspect neurological disabilities.

All people with Autism Spectrum disorder diagnoses are Autistic. That is NOT debatable. For example, Scott Robertson, John Elder-Robison, and Katie Miller have Asperger’s Disorder diagnoses (NO functioning labels attached). They are Autistic. Dora Raymaker, Michelle Dawson, Amanda Baggs, and Alex Bain have Autistic Disorder diagnoses (NO functioning labels attached). They are Autistic.

I have an Asperger’s Disorder diagnosis (NO functioning labels attached). I am Autistic. However, I do not smear feces. I have been mildly self-injurious before. I am not aggressive. I can read, write (with MAJOR exceptions), and type. I CANNOT write a lot neatly due to motor control, low muscle tone, and grip issues. In a literal sense, I am able to speak. I will not describe my challenges with speech production - mild Apraxia, stuttering, and related issues here. I will not detail my significant speech delays and difficulties during childhood here.

As adult Autistic, I can only speak for MYSELF. If a cure will be found in my lifetime, I would NOT take it. I (emphasize Katie) do not want to be cured. I have learned to accept and embrace (still working on) my Autism Disorder. I do not have a strong emotional viewpoint on being Autistic. I neither hate nor love my Autism. I do NOT celebrate the disabling traits of my Autism Spectrum diagnosis. I celebrate my talents, abilities, and strengths. I celebrate my hyperlexia that includes ability to read extremely rapidly, above grade level, and decipher most vocabulary from contextual clues. In addition, I celebrate my positive traits related to my personality, Autism Spectrum diagnosis, and other positive traits.

Monday, May 4, 2009

Being Autistic Versus Anxiety Disorders

I am autistic (NOT self-diagnosed). The mind of individuals on the Autism Spectrum is wired differently. However, my different wiring is not "natural variation." My autism spectrum diagnosis is a disability and presents negative traits such as not being able to focus on things other than my interests, inconsistent eye contact, sporadically delayed and incoherent speech production, stuttering, other speech problems, and auditory processing delay. My other challenges include: a hypersensitive auditory and tactile sensory system and other difficulties that present with being Autistic.

However, Autism Spectrum Disorders are not a disease or mental illness. Autism is a SPECTRUM medical disorder, NOT "natural variation."

I strongly support Neurodiversity, especially Michelle Dawson's version. However, I just realized how my views have come into conflict with the mainstream Neurodiversity philosophy. I don't agree that the autism spectrum is 100 percent genetic. What about the environmental triggers, lack of oxygen at birth (personally experienced), exposure anxiety, GI issues, and other causes?

If Autism Spectrum Disorders are to be considered 100 percent genetic, then researchers and scientists would have a reason to fund eugenics. I am 100 percent against eugenics for all disabilities.

It is a fact people on the Autism Spectrum have mental illnesses and co-morbid medical disorders. For example, I have two co-morbid medical disorders. My  anxiety disorders are not part of me. They prevent my quality of life.

Deena, from the "No Myths" PSA said, "Autism is an integral part of who I am." My autistic disability (neurological and biological), my personality traits, and other positive traits are an integral part of who I am.

I have accepted and embraced my autism spectrum diagnosis. That does not mean I will do nothing to improve my quality of life.

Gifts & Talents:

I am a musician. I have been taking piano lessons since I was 10 years old. I am on hiatus from piano lessons and practicing.

I am a writer. I like to various things and sometimes opinion responses.

I am hyperlexic. I can read very quickly, above grade level, and generally have good comprehension (except some figurative language). I can decipher most words from contextual clues.

I am a college student. I have just finished Spring 2009 - my first semester of community college. Like Jake Crosby, I decided not to ask for accommodations. Consequently, I have struggled but the semester is almost over, and I am passing. I did tell my professor I am Autistic. She has been very understanding. I chose not to disclose my autism spectrum diagnosis to the disability services office because I wanted to prove to myself I could take tests without extended time.

I am an employee; nonetheless, I struggle significantly.

Anxiety disorders are horrible, devastating illnesses.

Sarcasm - Part I: I enjoy being anxious and having anxiety attacks, racing heartbeat, sweat palms, and other physical symptoms. Celebrate social and performance anxiety. Anxiety is a natural prevention of quality of life. Anxiety is natural suffering.

Sarcasm - Part II: I enjoy getting obsessive thoughts. I enjoy when my mind gets stuck, I think we should celebrate not being able to get thoughts out of one's brain.